Hello and welcome to the Interview Study!

We are looking for youth aged 13 to 18 years with 22q11DS and one parent to be part of this research study.

Thank you for your interest in being part of this study. The study is being conducted by a research team at innovation Research & Training (iRT), a behavioral science research company in Durham, North Carolina and it is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDLRR). The purpose of the project is to develop an online mindfulness education program for adolescents with 22qDS11 to promote the use of healthy coping strategies and learn how to effectively regulate one’s emotions and behaviors.

What will we be asked to do?

  • Participate together in an interview using online, video conferencing with an iRT research member.

  • Review some parts of the program.

  • Respond to interview questions related to the program.

  • Participation is voluntary and participants can stop at any time. All responses will be kept confidential.

  • Each family will receive $50 for participating in the study.


Are my child and I eligible to participate in this study?

One youth and parent per family can participate in the study. To determine if you and your child are eligible to participate in this study, please complete the brief survey below. All of your responses will be kept confidential.


1. How old is your child?
 
2. What is your child's gender?
 
3. What is your gender?
 
4. What race/ethnicity is your child?
 
5. Is your child of Hispanic, Latino, or Spanish origin?
 
6. What race/ethnicity are you?
 
7. Are you of Hispanic, Latino, or Spanish origin?
 
8. Does your child have 22q11.2 Deletion Syndrome?
 
9. Does your child have a diagnosis of a psychotic disorder?
 
10. Does your child have an IQ greater than 60?
 
11. Does your family have access to a computer or tablet that has Internet access?
 
12. Do you and your child speak and read English fluently?